ALS is still poorly understood. By sharing data with other companies and research centers we are working hard to reveal the pathways of ALS. Clinical trials have failed due to the complexity of the disease. We believe that trials are necessary, but are too slow, bureaucratic, and ethically hard for patients confronted with a shortened life expectancy Patients know best what they feel, such as, whether a drug is working or not. The placebo effect has ceased importance. In today’s world information travels at the speed of light, so people are informed about failures and successes in an instant. Patients hold important information, this information however, is often not being used by researchers. Our credo is therefore: therapy development by patients for patients
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